As some of you may know, in September I was diagnosed with a rare genetic disorder called X-linked Creatine Transporter Deficiency (CTD). This disorder is one of many known mitochondrial diseases that researchers are working to find a cure for.
I've been struggling with health problems, developmental delays and cognitive impairments since I was born. Now we have our answer - and it means I'm facing an uphill battle.
The good news is, I was born to fight. It's in my name, Reid Patton Strauss, and it's in my heart. I'm feisty, strong and persistent. That's why the call me "The General". I will endure the hardships and I'll forge on. What other choice is there? Surrender is not an option.
To read more about CTD, visit:
http://www.umdf.org/site/c.8qKOJ0MvF7LUG/b.8047769/k.BEE8/Creatine_Deficiency_Syndrome.htm
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Hello. My son was just diagnosed with the same thing and I was wondering if I could talk to you via email and ask you a few questions. Is there an email where I can send you a few questions?
ReplyDeleteThanks!
Hey, my son is now 10 and was just diagnosed last May after years of testing...email me so we can talk...margaux_joseph@yahoo.com
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