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Monday, February 4, 2013

Great Walk for a Great Cause


On Saturday, friends and family showed up to march with Reid's Army in the Energy for Life Walkathon in Houston.

We are truly amazed by all the support! Over 60 walkers showed up and Reid's Army raised over $8,000 for the United Mitochondrial Disease Foundation. We are so grateful to all who participated and donated their time, money and services.

As parents of a special needs child, we depend on you. Sometimes it does take a village to raise a child and we are so lucky that we have an army to help with ours.

Thank you so, so much!!

Tuesday, January 15, 2013

Energy Walk for Life


We will be participating in the Energy for Life Walkathon on Saturday, February 2, 2013 in Houston, Texas to support the United Mitochondrial Disease Foundation and research efforts. The walk is a 1 mile or 5K, encouraging families to participate. Please consider joining our team in this event by signing up to walk with us or making a small donation. 

If this is something you would like to be part of go to: 

http://www.energyforlifewalk.org/faf/home/default.asp?ievent=1040611,

Click under Visitors section on left and log onto either Walker Registration or Donate to a Walker. The team name is Reid's Army. If you have any questions, please email: wstrauss@austin.rr.com.

Creatine Transporter Deficiency

As some of you may know, in September I was diagnosed with a rare genetic disorder called X-linked Creatine Transporter Deficiency (CTD). This disorder is one of many known mitochondrial diseases that researchers are working to find a cure for. 

I've been struggling with health problems, developmental delays and cognitive impairments since I was born. Now we have our answer - and it means I'm facing an uphill battle. 

The good news is, I was born to fight. It's in my name, Reid Patton Strauss, and it's in my heart. I'm feisty, strong and persistent. That's why the call me "The General". I will endure the hardships and I'll forge on. What other choice is there? Surrender is not an option.  

To read more about CTD, visit:
http://www.umdf.org/site/c.8qKOJ0MvF7LUG/b.8047769/k.BEE8/Creatine_Deficiency_Syndrome.htm